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Tuesday 6 August 2013

The child they call 'fish boy'

The child they call 'fish boy'http://news.asiantown.net/r/30449/The-child-they-call---39-fish-boy--39-

Submitted by Anonymous on Tuesday, July 30, 2013 2:29:00 PM - Source: thesun.co.uk
THIS eight-year-old has been nicknamed 'fish boy' by neighbours - because he's covered from head to toe in thick, itchy scales.
Pan Xianhang was born in Wenling, China with a rare genetic skin disease known as Ichthyosis, after the ancient Greek word for fish.

Most sufferers develop dry scaly skin across part of their body, but Pan's case is severe: his scales have affected the shape of his eyes, nose, mouth and ears - and they limit the movement of his arms and legs.

The condition also means he's in constant pain and struggles to sleep at night because of the itching.
Sufferers are treated with creams, oils and moisturisers, which are designed to hydrate the skin.

Liz Dale a spokesperson for the UK-based Ichthyosis Support Group said: "There is no known cure and treatments for ichthyosis are predominantly keeping the skin moisturised with plenty of emollients i.e. lotions and creams.

"The skin needs to be moisturised to prevent it from further drying out, which could cause the skin to crack, making it more prone to infection, which may be fatal."

Last year, Channel 5 documentary The Boy They Call Fish, followed the plight of Vietnamese teenager Minh Anh, who was abandoned as a baby after he was born with a severe form of Ichthyosis.

The 18-year-old's condition means he's forced to live in the special wing of a hospital in Saigon - where he gets regular visits from Essex gran Brenda Smith.

Brenda took Minh under her wing when he was just three years old and she's currently raising funds to help support him.

Pan-Xianhang-fish-boy
Itching ... Pan struggles with constant pain

Pan-Xianhang-fish-boy1Rare ... 8-year-old was born with the condition

Pan-Xianhang-fish-boy2Doting ... Pan's mum says lad wants to go school like other kids


Pan-Xianhang-fish-boy4
Severe ... scales are so bad they affect his ability to walk


Pan-Xianhang-fish-boy5

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